PHCentral: the difinitive internet resource for PAH information and support for Patients, Caregivers and Medical Professionals
COPING WITH PAH: Tips & tricks

Tips and Tricks, a treasure-trove of useful information

As every person with pulmonary arterial hypertension comes to realize, there’s a lot to learn. There’s the disease itself to sort out - a disease few people understand - and then there are new treatments to consider, doctors to visit, waxing and waning energy levels to deal with, families to nurture and chores and jobs to do. For some of us there is new equipment to learn how to use: Flolan pumps, Hickman lines, oxygen tanks, scooters. It’s a lot to deal with.

If you’ve found a way to connect with other PH’ers along the way, you’re probably sharing information and tips for making your life a little easier and know how wonderful a resource you have. We’d like to make our tips section a place for you to learn even more, a place to share practical and useful tips with others. We hope you’ll help us make this a great resource for patients and family members alike.

We think you will find some very useful information within the sections below, but we’re always willing to add more sections as we get new tips. If you have some practical advice to share, please send your tip(s) here.

Around the House
Children
Daily Life
Diet and Food
Flolan
Oxygen
Remedies
Remodulin
Revatio
Ventavis
Working With Your Doctors

 


This site has been constructed by your friends and neighbors in the PAH community. All material on this website – unless otherwise noted – has been written by members of our volunteer staff and is copyright protected.
The material is for informational purposes only and does not constitute medical, financial, theological or legal advice. The material does not necessarily reflect the opinions of PH Central, Inc, and is not guaranteed to be correct, complete, or up to date. This information is not intended to substitute for obtaining medical advice from a doctor, legal advice from an attorney, or financial advice from a financial planner. No person should act or rely on any information on this site, or linked to this site, without seeking the advice of the appropriate profession to which the information applies.

 

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