Keeping for more than 14 days
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Remodulin can now be kept for more than 14 days. When you get down to the bottom of the bottle there still may be a bit left in the bottle. How can you get it out when you have to start with a new bottle. Pull back the syringe and squirt your air into your older bottle. Draw out all of the medicine that you can, then draw the syringe back more, then squirt that air into the new bottle, not the remodulin from the old bottle - just the air. Then draw out the med to make it up to the number you use, like our syringes go to three. I could not figure out how to do this until someone explained.
Submitted by -- Celeste
Pump
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Hiding the pump isn't hard at all. I find wearing a shirt that covers the waistband of the pants or skirt does the trick in covering the little annoyance. And in the summer, a nice sundress when on the beach or lounging around the house with the AC on.
Submitted by -- Aries
Pump pouch
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I ordered a soft waist pouch for my Remodulin pump to wear under a nightgown or under dresses. There are a variety of pump cases and accessories available, including a waterproof case for swimming. They can be ordered from the MiniMed site.
Submitted by -- Lynn Schaeffer
Site infection
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If by chance you do get a site infection, there are many creams that can help, one is a prescription called Bactroban, when administered correctly the effects of the infection go away in days. If you don't have that cream, any pain relieving cream such as Unguentine or Neosporin will do. Just don't ever get it into the site hole itself, that hurts!
Submitted by -- Aries
Site pain
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Here is a technique that was given to me by another Remodulin user. For her it has stopped her site pain all together. I do do this and some sites there is no pain. Other sites I do still have some pain but not nearly as bad as I use to. Maybe it can help someone else too.
After priming the pump and putting the needle in the soft serter you need to clean it again with an alcohol swab. Clean the needle and the soft serter and the prongs. You want to make sure that you dont have any of the Remodulin dripping from the needle or on the soft serter. Lay your pump lower than the injection site. This is so while you are doing the shot that no Remodulin drips from the tip of the needle. I lay mine on the floor. I only do my stomach area. The Remodulin is what is causing the site pain. By not getting any Remodulin on the skin while doing a shot can help to get rid of the site pain. Some of my sites it gets rid of all of the pain then there are other sites that I still have some pain but not as bad.
Submitted by -- Lora
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Having site pain? Not to worry, a nice warm (not hot) bath will do the trick most times, it will also relax you. If baths aren't your thing, you could always use a heating pad or something to that degree to ease the ache.
Submitted by -- Aries
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For site pain, I use Solarcaine Aloe Burn Gel (green stuff, available at most drug stores for about $3.50) for rubbing on the skin of the old site. It contains lidocaine, a good topical anesthetic, and the aloe helps with itching.
Submitted by -- Lynn Schaeffer
Site protection
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Keep the activities that involve stretching the arm or the stomach (depending where it is on you) to a minimum. The site can and will fall out (happened to me on several occasions).
Submitted by -- Aries
Sites
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Changing the site time is important. Never leave a single site in more than a week. You risk infection and bad pain when doing that. Though it's annoying, it's a necessity =).
Submitted by -- Aries
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Alternate site areas are always helpful especially when the stomach is tender and you can't find a place that isn't hurting. Using the arm as an alternate is always good, anywhere between the elbow and shoulder, a few centimeters to the right of the bone should work just fine.
Submitted by -- Aries
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When choosing a site for the Remodulin (or Ut-15) always press your finger over it before insertion to make sure that it does not throb or present some kind of a heartbeat, that usually means there is a vein or capillary there, and you don't want to hit those.
Submitted by -- Aries
Swimming
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When swimming with the pump, always make sure it's in the waterproof case, and that the tape over the site is secure. Again, it can easily come undone and fall out if it's not on correctly, and as for the pump, well, we all don't have 6,000 dollars to get a new one with.
Submitted by -- Aries
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