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Remedies

Here is an overview of the site:

Coping

An often overlooked yet important concern is the emotional well-being of chronically ill patients, caregivers and friends. PHCentral addresses this issue by providing our visitors with support resources on the site, on the Internet and in their own community. We also try to connect people online through email lists, diaries, message boards and chat sessions.

Our Support System Includes:

Support Group Listings
List or find a PH support group near you.
Patient / Caregiver Diaries
Journals written by PH patients and caregivers who wish to share their lives with others
PH Friends Photo Album
This page is filled with old and new PH friends. We’ll be happy to add your photo to our album.
Tips & Tricks
Information and tips for making your life a little easier; a place to share practical and useful tips with others.
Tidbits
Things you should know but probably don't.
Features
Articles on many subjects written expressly for PHCentral.
Travel
Travel tips and information for patients on supplemental oxygen.
Memorials
Photos and stories of friends we’ve lost.
Creative Corner
A showcase of arts and crafts by PH friends.
Pet Corner
Patients share their stories and photos of the furry, feathered and scaly pets that enrich their lives and give them comfort.
Books
Publications we think you might want to check out organized in three groupings: coping, medical and financial. If you would like to add a good read to our list, please write to us.
Links
Here you will find links to other websites and organizations we think you might find useful. If you find a site you think would be a good addition to PHCentral, drop us a line.

Medical

PHCentral's medical section is provided to explain the basics about pulmonary hypertension, the diagnostic process and available treatments. . Although we do try to keep current, the information you find here may be incomplete. We strongly urge site visitors seeking the latest medical advice and treatment options for PH and any of the diseases associated with PH to gather information from a variety of reputable sources.

Financial

Insurance Matters (formerly under Action Central)
We have compiled a list of useful resources you will want to investigate if you have questions about private or government medical insurance coverage. We cover health insurance basics as well as U.S. government sponsored health insurance plans. You will also find a number of articles written by our resident guru Alan Harder on the social security / disability system and several others written expressly for PHCentral.
Assistance Programs (formerly called Financial Topics under Action Central)
Discussions and help navigating the disability system in the U.S. Other resources to help those in need of financial assistance.
Books
Links

News – Current and Archives

Our newsroom is open Monday through Friday, rain or shine to bring you the latest in PH news and other health matters of interest to you. You will also find relevant news items at the bottom of medical, action and financial pages.

Connect

One of the hardest things about living with chronic illness in general and Pulmonary Hypertension in particular, is the isolation. You will find many ways to meet and share with others here including:

Message Board
Sign up for our private ListServe email forum moderated by a team of dedicated PHC volunteers to become part of a vibrant, online community..
Chat
On any day or evening of the week, you just might find someone in chat looking for a kindred spirit. The door is always open. A chat schedule is available and will be announced on PHFriends and the public message board so you’ll want to check there too.
Contact Us
We are a small, grass-roots organization and we do respond to emails promptly. Tell us what you think – what works and what doesn’t. Please share with us what you like about the site and ways to improve it. This site is for you.

Action

There are things you can do to help yourself, your community and the furthering of PH research. This section contains:

Intro to section
Learn why you benefit by becoming involved.
Legislation You Should Know About
From time to time, we bring to your attention a bill that is before Congress or the Senate and ask you to write to your Representatives or Senators to take a position.
Social Security & Disability
If you’re trying to decide how to proceed with social security and/or disability, you’ll find a wealth of information here.
Patient Advocacy
Learn why it’s important to choose a PH specialist for your care and how to get the most out of your doctor visits.
Contact the Action Desk
You’ll find FAQs here on social security / disability issues and email links to our experts for personal attention.
Volunteer
Contribute

Links

You will find links to many other online resources on the following topics:

Tape Adhesive

To get the tape adhesive off your skin, try using nail polish remover which has acetone in it and that's what you use to get super glue off your skin. You can also try goo gone; if it works on floor adhesive it will take tape stickies off, and it's gentle too.

Submitted by -- Shery

Tape Rashes

For nasty rashes caused by tapes, use an over the counter hydrocortisone cream. Put it on very thin, only when needed. I got the store brand just to try it and it takes the redness right out and not so itchy. I usually use it only when we change.

Submitted by -- Celeste
Editor's Note: An alcohol prep pad can also be used to slowly lift the tapes. if the tape is made of paper, saturating the paper tape will allow it to come up easier.

Thrush

If you take a steroid or an antibiotic, you run the risk of developing thrush, an infection of the mouth caused by an overabundance of yeast. Most of us have this yeast in our mouths, but it is kept in check by the presence of other naturally occurring bacteria. Steroids and antibiotics tend to kill off this good bacteria leaving the yeast to grow unchecked.

I check my tongue regularly to make sure it's pink, not white. When it begins to turn white, I know the yeast is getting out of hand. So far, I've been able to keep things in check by taking a supplement that can be purchased from any good vitamin store. It's called acidophilus. Yogurt is another good source of good bacteria, but I have an allergy to milk products and so chose the other route.

So far it's worked well for me. I take an inhaled steroid every day and even though I rinse my mouth carefully after each puff, I sometimes get a furry tongue.

I've been told and read also, that acidophilus needs to be stored in a refrigerator so if you decide to buy a bottle of it, make sure it's refrigerated at the time of purchase. There are some brands on the shelf that claim to be "shelf stable", but there is some controversy about that claim.
P.S. If you're interested in this topic, you might try a search of the Net. There are diets that actually promote good bacterial growth in the intestines and mouth and foods you should avoid if you have thrush. The last thing you want to do is encourage any more yeast to grow and some foods are better than others.

Submitted by -- Cheryl Switzer

This site has been constructed by your friends and neighbors in the PH community. All material on this website – unless otherwise noted – has been written by members of our volunteer staff and is copyright protected. The material is for informational purposes only and does not constitute medical, financial, theological or legal advice. The material does not necessarily reflect the opinions of PH Central, Inc, and is not guaranteed to be correct, complete, or up-to-date. This information is not intended to substitute for obtaining medical advice from a doctor, legal advice from an attorney, or financial advice from a financial planner. No person should act or rely on any information on this site, or linked to this site, without seeking the advice of the appropriate profession to which the information applies.