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COPING WITH PAH

Traveling with Supplemental Oxygen

By Cheryl Switzer
PHC Staff member and Features Editor


In General

Being on supplemental oxygen does not mean you have to be housebound. Many of us have learned to grab the tank and go. Your doctors will tell you to stay as active as possible and to use your oxygen as prescribed and if you feel well enough and have your doctor's permission to travel, do it.

With a little planning, it's fairly easy to obtain oxygen on the road, in the air, across the country or around the world. There are limitations, of course, so you'll want to plan carefully.

Before You Plan Your Trip

All oxygen suppliers are not equal. Smaller regional suppliers may not have the resources and / or the expertise to help you plan or execute your trip. So, before you get serious, call and ask for the travel desk, tell them where you want to go and find out what they can do for you. If they fail the test, call a few other suppliers who service your area. You can switch suppliers at any time.

Road Trips

If you're driving straight through to a known destination, your oxygen supplier can arrange for portables and / or reservoirs to be delivered when you arrive. If you're using gas canisters, you may want to pack a few extra in case an unplanned stopover is necessary. If you're using a liquid system, you may request a 40 pound reservoir which can be strapped into a back seat with an ordinary seat belt.

If your trip is more free form, you may be able to work something out by carrying extra supplies and asking your supplier for some contacts along your route. This is more difficult for the suppliers to handle, but it never hurts to ask for what you want.

It's never a bad idea to play the "what if" game. You may ask your supplier, what you should do if you run out of oxygen unexpectedly, who you should call and what you can expect to happen. After all, you are taking a vacation to get away from daily worries so do some contingency planning before you leave.

Keep this In mind when you're estimating your oxygen needs. If your destination is a mountain retreat, you'll be using more oxygen than if you are headed for the beach. Don't underestimate. And make sure you have a copy of a doctor's signed prescription. You may be asked to show it to obtain additional supplies along the way.

Air Travel

Some but not all airlines offer supplemental oxygen to passengers. And as of 2006, Portable Oxygen Concentrators (POC) such as the Inogen One, AirSep Lifestyle and SeQual Eclispe are all allowed thru TSA at the airports and many major airlines allow their use in-flight with a written physicians authorization and advance reservations. Consult your airline about their policies and proceedures.You'll want to check with your airline prior to finalizing your ticket sales. Please note that if your airline of choice does offer supplemental o2, they will charge you for it and it's not cheap. If your flight is non-stop, you'll pay one fee. If you must change planes, you will be charged for each leg of the journey. They will NOT allow you to use your own gas or liquid systems on the plane but may allow POC's as mentioned above. But no matter what you use, you'll need a recent doctor's prescription to show them when you check in.

Once again, it's a good idea to check and recheck your order for supplemental oxygen. Call the week before your flight to make sure they have it ordered for you or have made note of your intention to bring along your own POC. And when you arrive at the airport to check in, ask them to review their notes about your oxygen needs.

When you finally board the plane, they will have you board early. If you are using supplemental oxygen they provide, the steward will show you the box under your seat, set the flow for you (based on your doctor's written directive) and make sure you are comfortable. If you are using your own POC, they will show you where to plug it in.

Note: In-flight oxygen the airlines provide is not portable so bathroom breaks may be a challenge. When you're booking your tickets, you may want to choose a seat near the restrooms.

After the Flight

Your oxygen supplier can arrange to have oxygen canisters or a full liquid portable waiting at your airline gate. If you run into any problems, ask to be taken to Traveler's Aid. If you must take connecting flights, make sure your supplier knows you need oxygen for each leg of your trip including a supply at the arriving gate between connecting flights. And don't be afraid to check and recheck to ensure
everything is in place prior to your departure. It's much too
important to leave to chance.

Who Needs In-flight Oxygen?

If you do not use supplemental oxygen in your daily life, but have experienced uncommon shortness-of-breath at high altitudes or during a recent airline flight, ask your doctor about in-flight oxygen. Riding in a commercial airline is like being at 7,000 feet and if you're feeling very s-o-b, your blood saturation may be dipping into the 80's. As many of you know, your heart is under tremendous stress when SAT's fall below 90. An investment in in-flight oxygen is a very good investment so do purchase it if your doctor thinks you need it.

Other Travel

Supplemental oxygen can be arranged on Amtrak trains and many cruise ships and offer another possibility to those of us seeking a little freedom. As with all things, you'll want to plan ahead asking about the availability of o2 before you finalize your plans. When it's time to finalize things make sure the room you're being assigned has space for the equipment you will be using and a sufficient number of electrical outlets.

There is a wealth of information on the Internet and we urge you to look further. We think the links listed below are a good place to begin.

If you're a seasoned traveler and have some info or links you'd like us to add to this piece, please send them to: cherylswitzer@phcentral.org.


Good resources:

International Society of Travel Medicine

Amtrak


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