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COPING WITH PAH: Patient & Caregiver Diaries


Patient Diary -- Sue Mace
smace5@rainbowtel.net


Friday, November 28 2008

Thanksgiving is over...now comes the bigger rush!

I am thankful for everyone here at PHC that help me in my life and keeping things in perspective. Also for my phfriends and family.

Thanksgiving was so unreal for me this year...it was weird not having either of me girls here for the actual day...of course after today, Elicia will out of the house and I doubt if she comes home for Christmas. But that's life.
Becca and her family will be here for almost a whole week then...so I get to enjoy her and hopefully not babysit all the time that week. So, I can sit down and enjoy them.

I really miss them. Wish we could all live closer...but whatever God's will is. I'm just thankful for my daily ability to still be walking and talking...Thank you, God!

Yeah, I know...this is mushy alittle...what a change that a holiday can make in a person...but I realize that my girls are old enough to be moving on with their lives. I'm ok with it really...they really have been in and out of my life for awhile now...so, it's not that much different now. I am closer to Becca now...Elicia is back with Patrick and she's back to her old self. One day whe will realize that there is more to life than him. But I have to be happy for whatever she chooses...it's not my life.

I am glad that the whole family thing is done for the holiday...it was a big mess. We are going to have a little gathering here for just us and Becca's family. I don't think I can handle big family gatherings anymore. But it may just be old age...who knows...maybe it's being set in my ways.

OK, that's enough rattling from me. I hope everyone else enjoyed yesterday and didn't get crushed in the Black Friday events! I stayed right here...no big store crowds for me.

BTW, I have given up everything to do with my mom's business...just will visit her from now on and take her to the doctor every three months. It's just too much on my health. Someone will take over paying her bills and buying her groceries or whatever. We talked with her case manager on Wed. and things will start on Dec. 5th. I can't wait. Rest...lol!

Ok, outta here!

God bless,

Sue

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Wednesday, October 29 2008

Foggy brain is clearing...

Hi everyone,

I'm feeling alot better, altho Mike is having a hard time.
I want to thank everyone for their support and want you to know that without this place...I don't think I would cope.

My garden is history...we've had a cold snap hit the area and it has gotten as cold as 21 degrees here. There is frost on the ground today with lots of beautiful colored leaves all over the ground. Looks like Mother Nature has gotten things ready for Halloween and Thanksgiving. I don't know that we are having a big to do here for Thanksgiving. I might bring mom over for it. But don't know about a huge turkey...there will be only 4 of us eating. Don't really need that nuch.

Do to the cost of things around here...I have actually started cutting down on food consumtion and it is starting to show on the scales....YIPPEE!!!

I want to say that I am sorry for my last two posts...I was really upset when I posted them and now with a clear mind...I realize that I wasn't thinking good when I posted it.  Thank you for putting up with my venting and emotional problems.

Well, I hope everyone is enjoying their day and I play on making some homemade bread and maybe some cookies for the kiddos coming today. They will like that and I can involve them. I'm thinking about snickerdoodles. My favorite to make...lol!

Ok, talk to you all soon...love ya'll!

God bless,
Sue

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Tuesday, October 21 2008

please forgive for throwing that last entry at you?

Hi guys and gals,

Just wanted to say that I'm sorry about the previous post and should have waited till I was in a better frame of mind...if that's possible.
I should not take everything I feel to the diaries and I'm so sorry. I think that for awhile, till my head clears some...I won't be posting an entry...just till things are fine with me.
Again, truly sorry and I will be back...I love reading everyone's entries and by no means am leaving you loonies alone without me...hehe! See, I do have a strange sense of hunor! LOL!

God bless,

Sue

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Tuesday, October 21 2008

bad attitude...what's wrong with this picture?

I know what's causing it...but the problem is...I don't have the money to pay for all of my meds, let alone my utility bills. I've stopped taking my Lexapro because of the cost and everyone else is paying including me. I just don't think I can handle anything anymore...I'm terrible to my grand nieces and grandnephews...and they aren't doing anything other than being theirselves. I feel so terrible...but what am I suppose to do. Mike's taking the light money to buy my med for me...but they are about to be shut off too...LIFE SUCKS...PERIOD!!!!

Sorry about the venting...just can't scream it out to everyone here and have them understand the pressure I'm having. My mom's phone was shut off two weeks ago and mine was just shut off today.

This whole economy thing sucks big time too and is putting more pressure on me too.

I've gotten on to Elicia the last couple of days bc all she does is waste the gas and her money for stupid stuff, she did give us $100 for the lights...but the problem is, I have to keep the vehicles tanked up bc of her job, Mike's job and an emergency. She will run all the gas out of one vehicle and then drive the other one and drive al lthe gas out.

I'm sorry about this Elicia...I do love you...but not the way you are acting right now. I know...my attitude sucks too.

I have to go for now...sorry for this post.

God bless,

Sue

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Saturday, October 18 2008

Hi, my name is Sue and I'm an addict!

I know this is an unusual color for me...but it kinda fits the mood these days. I just found myself licking the popcorn bowl that I had. I'm addicted to salt and food. I can't stop myself from eating and consuming things that I shouldn't. I need help, but don't have the money to go to anyone for it.

I find myself these days just eating anything that has salt in it...and it doesn't matter what it is. I shouldn't be doing all of this and I know it, but I can't help it.

I've eaten one whole kosher pickle tonight, popcorn with a load of salt on it...and the bowl too! I had a half a jelly sandwich and a popcicle. What am I going to do about this?

I think tomorrow will be the only clear and warm day that we have for awhile...so I can go for a walk...but what do I do after that. I even baked brownies tonight...but had to throw them away bc I overcooked them. Which was probably a good thing. I have the craving to bake some homemade bread...but that is a starch and I'm told bad for me. I've been drinking sugar in everything, too!

My name is Sue and I'm an addict!

HELP!!!

God bless,

Sue

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