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Patient Diary -- Shelly Carder
biotch91@msn.com
Monday, September 11 2006
Welcome to our new diarist
Welcome to Shelly Carder to the diaries.
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Wednesday, September 13 2006
Well I will start off by telling you more about myself. I am a 32 yr old (soon to be 33) single mom of an 11 year old daughter, Karen, and a ten year old son,Christian. If it weren't for them I think I would just say the heck with all of this and give up. I was just diagnoised with having PH. I am waiting to get a sleep study done, then my doctor is going to be sending me to a new PH clinic in milwalki winsconsin. I am anemic and my blood doctor did some test and they also think that I may have a rare form of leukemia. I have to get a bone marrow biaposy next week. All of this is happening at one time and I think I am getting VERY overwelmed. Thank god for my baby sister, without her I do not think I would keep my sanity! I am not sure what to write bout yet because so far I am not doing any kinds of treatment for my PH. All I know is I am VERY glad that i found this group, because you all have taught me a lot more than what I knew bout the disease we are living with. Well I will write more later. I hope I haven't bored anyone!! It is good that i have you all to come to!!!!!
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Thursday, September 21 2006
Well here it is 2:15 am and as usual I feel asleep early and now can not go back to sleep. I went and got the other bone marrow biopsy done today, dang that was worse than the other. So time will tell what I find out with that. I also had a visit to get approved to have someone come in and help me. I can not even do simple household chores anymore without having to take millions of breaks. I hate that! There are so many things bout this disease that i already hate and don't understand. My family has been great, but they do not fully understand what I am going to. There are days I feel so bad, it is hard to get up. I keep going for the kids. I can not wait til I get to see my PH Dr and get some kind of treatment started, then maybe I will be able to do more! Well I am going to go n try to go back to sleep. I will write more later.
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Friday, September 22 2006
Well another day has passed. I haven't been feeling the best. I have a cold and have been going out in the crappy weather to Christian's football games. I have been trying not to let myself get stressed out, but at times it is so hard not too. I feel bad for the kids. They haven't seen their dad in months and he can't even take 10 min out of his schedule to call them and let them know that he is alive. Then outta the blue he calls here and starts stuff with me and then it seems like i end up in the hospital that night cuz i get so stressed out. Another doctor appointment tomorrow. I am getting so tired of all of these appointments. I was thinking the other day, that I hope all of these dr visits will be helpful. I want to be here for the kids, because without me they really do not have anyone but my family. I know that their Dad won't step up and be there for them! I am also worried about Christian. Since he has found out that I have been sick, he hasn't really been sleeping well. He is always getting up and checking on me at night and making sure i am using the O2 like I am pos to. I keep reassuring him that I am fine, but he still keeps getting up and checking on me. Well I guess I better go and try and get some sleep. The kids have school today...Good night all and sweet dreams!
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