Features

Iron Deficiency and Pulmonary Hypertension
By Ralf Schmiedel, Contributors: Helen Puckett & Cheryl Switzer

Iron is even more important than might be expected for PH patients. During the last couple of years, iron levels and iron deficiency in patients with pulmonary hypertension has become an ever increasing focus for researchers. It seems that PH patients should take special care to keep iron stores full because low iron levels can lead to a worsening of the disease process.
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Sinus Problems? Here's One Solution (no pun intended).
By Cheryl Switzer

If you are bothered by allergies, the occasional head cold,  post nasal drip, chronic sinusitis or just the occasional stuffy nose, there is an old tried-and-true remedy you should consider trying.   It's called nasal irrigation and it's easy to do. Read More


I Have PH. Can I take any of the PH Medications?
By Cheryl Switzer

Am I a Candidate for PH Medication? Read More


New Dietary Guidelines for 2010 Released - Changes that may affect you
By Cheryl Switzer

The FDA issued new Food Guidelines for All Americans on January 30, 2011.  Some of them affect you. Read More


Exercise and Pulmonary Hypertension
By Cheryl Switzer

If you’ve searched the Internet for advice about exercising and pulmonary hypertension, you probably have not found much.   There is a very simple reason for this.  There is no such thing as a standard PH patient and therefore no “one size fits all” exercise plan appropriate for everyone. 
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The Hill, a poem
By Jode Cox

If you are living with pulmonary hypertension or are close to someone with this disease, then you know how formidable a hill can be to someone who gets short-of-breath easily.  But that's not the whole story.  There are hills and there are hills.  Ms. Cox reminds us about the other hills too, the ones we face in trying to grasp the nature of this illness and the uphill battles we face in educating others about our limitations.  These are issues we can all relate to. Read More


Contingency Planning for C-Pap / BiPap Users
By Cheryl Switzer

If you depend on a C-Pap or BiPap to support your respiratory system during sleep, you will want to consider putting together some contingency plans. Any kind of storm or other disaster, which can easily interrupt electrical service to homes for hours or days at a time, can be very stressful times to those of us dependent on medical equipment. Read More


Flu Season Strategies for the PH Patient
By PHC Medical Editor, Helen Puckett

As we approach the flu season in the United States, many of us are worried.  As a group, PH patients fall within the high risk category, those with an underlying condition who are more at risk for serious and sometimes fatal complications from the flu.  To make things even more difficult this year, there are two different flu strains to avoid. Read More


Navigating The Health Care Super-Highway:
The anxieties of a consumer-oriented hospital system

By Leela Rottman

This original work by Leela Rottman, from Hobart Australia, discusses how in the world of Medicine, we are now encouraged to become equal partners in making our healthcare choices. As a PH patient with limited stamina and at times a dodgy memory, this can be especially challenging. Read More


Dark, Disturbing, but Deeply Insightful
By Leela Rottman

A review of Amy Silverstein's Heart Transplant Memoir, Sick Girl

Sick Girl's unflinching honesty enters territory unexplored in many sickness memoirs; the emotional and psychological impacts of illness. Although at times tending towards a bleak, and self-pitying tone, Sick Girl is also sharply observant, and tinged with a wholesome dash of realism. The keenly questioning nature of Silverstein's book, responsible for no little amount of controversy on its 2007 release, makes for confronting and ultimately inspiring reading. Read More


Random Thoughts
By Tom Mcleod

Random Thoughts is an original poem sent to us by Tom McLeod, the father of a teen-age son with PH. Mr. McLeod's poem reveals the raw emotion of a father with grave concerns about the future for himself and his son. Read More


The Canadian Medicare System - An Overview
By Bob Wilson

Bob Wilson, a Canadian living in Ontario, a senior citizen and a retired health physicist, has some strong convictions when it comes to healthcare issues. He firmly believes that excellent medical care should be available to everyone regardless of their personal financial circumstances. He further believes that it is the responsibility of public officials at every level of government to ensure this availability. Although Bob admits there are stresses and strains on the Canadian Medicare system, most would agree that Canadian programs offer excellent medical care to every qualifying citizen. As many of you know, there has been much controversy and dialogue in the United States over the years about adopting a similar program. If you've wondered how they manage so well in Canada, Bob's overview of the Province of Ontario will surely be of interest to you. Read More


When the Insurance Company Says “NO”
By Armond Aserinsky, President and Science Editor


Welcome
By Armond Aserinsky, President and Science Editor


The Way It Was, The Way It Is
By Graeme Warner, Scotland - Contributor


The Lighter Side of PH

Laughter is Good Medicine. PH may not be a laughing matter, but sometimes things happen that bring a smile to our faces and give us a chuckle. There’s no harm in sharing them. Read More


The Emotional Side of PH
By cheryl Switzer

One woman’s thoughts on learning to cope with Pulmonary Hypertension Read More


The Courage to Change the Things I Can
By Graeme Warner, Scotland


Single Parenting with PH
By Bailey Rains

Bailey Rains, a mother of two children and a PH patient herself, tells us how it feels to be a “Mama Bear”. She is a recently divorced single parent with a lot to deal with. This is a short yet heartfelt piece from one of our star diarists. If you like this one, be sure to check out her journal in the Patient Diary section. Read More


Sarah of the Moment
By Sarah Ing

PHC diarist, actress, writer and television host, Sarah Ing tells her personal story including the great benefits she has realized after a year on the recently approved oral medication, Tracleer, with both energy and style. We think you'll enjoy it. Read More


Pumpless in Colorado
By Earl Selvage

Earl Selvage, one of our PHfriends and an active volunteer on this web site, shared his wonderful news with us recently in the form of a friendly email. After many years on the intravenous drug, Flolan, his pulmonary artery pressures are nearly normal, he’s feeling rather well and he’s been transitioned to one of the new oral medication. His pump is history. This, as many of you know, is every PH’ers dream come true. In this feature, Earl and our feature editor, Cheryl Switzer had a little chat and it is presented to you here in interview form. Earl is a pearl of a guy and we think his tale is worthy of two thumbs up! Read More


Myriam's Story
By Myriam C

PAH treatment in Mexico is hard to come by. The "big gun" drugs most Americans have come to rely on in the U.S. — Remodulin, Flolan, Tracleer — are simply not available to our PH friends to the south. Read how Myriam beat the odds with the help of a loving family and friends. Read More


My Story
By Paul Percival


My Nightmare and PH
By Merle Reeseman

If you think the healthcare system in the U.S. is broken, Merle's story will reinforce your view. Merle found herself underinsured after her husband's early retirement. It changed her life in ways you cannot imagine. Read More


My best friend, Jean
By Bill March

My wife, Jean March died from PH earlier this year. After her death, I found something she had written and I would like to share it with you all. It is a little talk she had given at a PH support group meeting on the plight of all caregivers. I offer it to you unedited, in her own words. But before you read Jean’s words, I’d like to tell you a little bit about my wonderful wife Jean and our life together. Read More


Mutterings and Musings on Being a Patient
By Cheryl Switzer


Life with Flo: The Series
By Karen Waters

Life With Flo first ran as a series in our private message board. When Myrtle Schmertz (pseudonym) began Flolan therapy, she wrote to the PHFriends message board about her progress, and that post soon became first in a series of humorous observations, thoughts and adjustments to life on Flolan. Read More


Mr. Spock Speaks
By Armond Aserinsky, President and Science Editor


Memory Loss and Pulmonary Hypertension
By Armond Aserinsky

Every so often, someone on PHfriends posts a little message about losing their mind. They complain of getting goofy and forgetful. This usually starts a long thread as many chime in.   Others say they have become forgetful as well, have missed appointments, dates, lots of small and not-so-small details on a daily basis.  Armond Aserinsky, the former president of PHCentral, responded to this some time ago with a thoughtful and comprehensive explanatio.   We think you will enjoy it.. Read More


Loose Lips Sink Studies
By Armond Aserinsky, President and Science Editor
and PHCentral Medical Consultants: Lewis J. Rubin, MD, Harold Palevsky, MD, and Ronald J. Oudiz, MD.


Choosing the Right Durable Medical Equipment (DME) Supplier
By Cheryl Switzer

If you are discussing the possibility of adding supplemental oxygen to your treatment regiment or have been on o2 for awhile and are not happy with your current supplier, you'll want to consider your options. There are a lot of choices out there so you'll want to shop around.  Read More


Do I Have To Ask?
By Jenni Messel

Jenni M, our newest staff member and feature editor here at PHC, reminds us that it's okay to ask for help when you need it. Read More


A Life of Lessons
By Rebecca Swartley

Rebecca Swartley, a nursing student happily looking forward to graduation next year, is a young woman in the prime of her life, or is she? When Rebecca was seven years old, the doctors told her parents she had pulmonary hypertension. They were also told their daughter would probably not live to celebrate her sixteenth birthday.
Rebecca was most certainly not privy to their assessment of her future. All she knew for certain was that she wanted to be just like everyone else. And that’s more or less just what she’s done. For a little glimpse into the life of a fiercely independent spirit, read A Life of Lessons. Read More


In the Wee Hours
By Annette Whittaker

A mother's letter to herself Read More


A Life on the Move
By Ruth Latimer

Ruth Latimer does not know how to sit still. She’s moved her family household countless times over the years and she’s not one to sit and stew other things. So, when she learned she had mild PH, she moved into action.. She’s done the reading, she’s determined to stay as fit as she can, and she’s starting a new career that gives her the flexibility she needs for up and down PH days. You’ve got to love the spirit of this woman. Ruth is definitely on the move again. Read More


Living Life While You’ve Got It
By Loris Wilson and Armond Aserinsky

This month we’re featuring a pair of letters, one written by a woman in deep despair - our PH friend, Loris Wilson - and the other offered in response. Loris’s original message was posted on the phfriends list here at PHC earlier this year, and although many friends offered support, one response was particularly poignant. Armond Aserinsky, who lost his wife, Carol to PH in November of 2001, reminded Loris - as well as the rest of us - the importance of living in the now. We all need to remember this from time to time. Read More


Backpacking Through Life
By Cheryl Switzer

is about Cheryl's own struggle to accept supplemental oxygen therapy. When they told her she would need full-time oxygen, she could not imagine a life tethered to a device. When she realized how fundamental a need this was and experienced the benefits first-hand, she made peace with it. Today, after nearly two-years of continuous oxygen use, Cheryl carries her little canister as easily as she carries her purse. If you’re facing a similar challenge or are just curious, read on. Read More


A Walking and Talking Miracle
By Shirley Jewett

This is the story of one woman's efforts to qualify for lung transplant surgery. Shirley Jewett describes her seven-year battle with primary pulmonary hypertension, her incredible determination to beat the odds, the sacrifices she was forced to make along the way and life after transplant surgery. This is a good read for all and a must read for anyone considering a transplant option.
by Shirley Jewett - Contributor Read More


A Father's Letter to the PHFriends Listserv
By Rich Bottini


Israeli PH Association Conference

On June 21st, they held their first national conference. Read on for more about the conference, contact information, and some pictures. Read More


A Flower For PH
By Sheila Williams - Contributor


Living Wills: One Patient's Experience
By Sherry Okonski - Contributor


Living With PH and Studying Cranes
By Armond Aserinsky, President and Science Editor


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LIFE WITH FLO: The Series: Part 9
By Karen Waters


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LIFE WITH FLO: The Series
By Karen Waters


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LIFE WITH FLO: The Series: Part 8
By Karen Waters


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LIFE WITH FLO: The Series: Part 7
By Karen Waters


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LIFE WITH FLO: The Series: Part 6
By Karen Waters


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LIFE WITH FLO: The Series: Part 4
By Karen Waters


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LIFE WITH FLO: The Series: Part 5
By Karen Waters


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LIFE WITH FLO: The Series: Part 32
By Karen Waters


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LIFE WITH FLO: The Series: Part 31
By Karen Waters


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LIFE WITH FLO: The Series: Part 3
By Karen Waters


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LIFE WITH FLO: The Series: Part 30
By Karen Waters


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LIFE WITH FLO: The Series: Part 29
By Karen Waters


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LIFE WITH FLO: The Series: Part 28
By Karen Waters


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LIFE WITH FLO: The Series: Part 27
By Karen Waters


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LIFE WITH FLO: The Series: Part 26
By Karen Waters


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LIFE WITH FLO: The Series: Part 25
By Karen Waters


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LIFE WITH FLO: The Series: Part 23
By Karen Waters


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LIFE WITH FLO: The Series: Part 24
By Karen Waters


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LIFE WITH FLO: The Series: Part 22
By Karen Waters


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LIFE WITH FLO: The Series: Part 21
By Karen Waters


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LIFE WITH FLO: The Series: Part 2
By Karen Waters


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LIFE WITH FLO: The Series: Part 20
By Karen Waters


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LIFE WITH FLO: The Series: Part 19
By Karen Waters


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LIFE WITH FLO: The Series: Part 17
By Karen Waters


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LIFE WITH FLO: The Series: Part 18
By Karen Waters


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LIFE WITH FLO: The Series: Part 16
By Karen Waters


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LIFE WITH FLO: The Series: Part 15
By Karen Waters


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LIFE WITH FLO: The Series: Part 14
By Karen Waters


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LIFE WITH FLO: The Series: Part 13
By Karen Waters


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LIFE WITH FLO: The Series: Part 12
By Karen Waters


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LIFE WITH FLO: The Series: Part 10
By Karen Waters


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LIFE WITH FLO: The Series: Part 11
By Karen Waters


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Navigating the Benefits Maze
By Kathryn Buck - PHCentral Editor


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