Email Lists

PHCentral Fireside: Online Support for Patients and Caregivers

The PHFriends email list on Fireside is exclusively for Pulmonary Arterial Hypertension patients and their families/friends. Registrations are individually screened.

Fireside combines the features of a bulletin board and an email list. Anyone who registers with PHCentral Fireside adds their name to hundreds of other PH patients, families and friends. Fireside members wanting to communicate with the other members of Fireside need only to send an email to that address. Everyone subscribed to the board will get the message. PHC Fireside allows people to read and post messages to a bulletin board, but it also allows for the convenience of having messages from the bulletin board delivered to you by email.
Click here to Register, or click here to log in if you are already registered for Fireside.

Fireside Help
for those who are already registered and need help with Fireside

You are encouraged to review the Netiquette guidelines for using Fireside.

Contact the Fireside moderators

  

PHA-UK Friends

Subscribe to PHAUK-Friends
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An easy way for patients with pulmonary hypertension and their carers to keep in touch.

Transplantation: Second Wind - Subscribe
Second Wind provides "support, love, advocacy, education, information and guidance" to lung transplant recipients, lung surgery candidates, people with related pulmonary concerns, and their families. If you are interested in joining their active e-mail list, send a e-mail to listserv@home.ease.lsoft.com with a one-line message body of: SUB SECONDWIND firstname surname (NOTE from Second Wind: DO NOT use your e-mail address!)

Scleroderma & Autoimmune Digest Email Support Group

Subscribe to SDandAdigest
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The purpose of this list is for people with Scleroderma, Lupus, Fibromyalgia and associated disorders to feel safe among others who truly understand... to obtain information and support, as well as cope with emotions without fear of judgment.


Scleroderma World

Subscribe to SDWorld
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SD World is a list dedicated to providing a place where those who suffer from Scleroderma and other autoimmune problems may gather in a warm, friendly forum for an upbeat, open and free exchange of thoughts, ideas and information.


Lupus-Living

Subscribe to Lupus-Living
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Lupus-Living & Fibromyalgia Support Group for men and women with lupus and other chronic ailments such as Chronic Fatigue, (FM) Fibromyalgia, Sjogens, and Raynauds. Caretakers, friends, spouses, and relatives of the lupus patients are welcome to join. Discuss topics such as medications, symptoms, lab test results, being diagnosed, fatigue, chronic pain & pain control, daily living, altered life styles, lack of sex drive, working outside the home & home base, family relations, weight control, conserving energy, hair loss & appearance, hidden handicap re what the public sees, and more. Directed by a nurse (RN) who has Systemic Lupus and FM.

PHA News

Subscribe to PHA news
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PHA News is a regular subscription newsletter presenting items of interest to pulmonary hypertension patients, their families and medical professionals. This type of list is not a discussion group.

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