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Email Lists

PHCentral WebBoard: Online Support for Patients and Caregivers

The PHFriends email list on webboard is exclusively for Pulmonary Arterial Hypertension patients and their families/friends. Registrations are individually screened.

WebBoard combines the features of a bulletin board, an email list, and a chat room. Anyone who registers with PHCentral WebBoard adds their name to hundreds of other PH patients, families and friends. WebBoard members wanting to communicate with the other members of WebBoard need only to send an email to that address. Everyone subscribed to the board will get the message. PHCWebBoard allows people to read and post messages to a bulletin board, but it also allows for the convenience of having messages from the bulletin board delivered to you by email.
Click here to Register, or click here to log in if you are already registered for WebBoard.

Webboard FAQ: Frequently Asked Questions
for those who are already registered and need help with Webbaord

You are encouraged to review the Netiquette guidelines for using WebBoard.

Contact the webboard moderators

  

PHA-UK Friends

<form action="http://groups.yahoo.com/subscribe/PHAUK-Friends" method="GET"> <input name="listname" type="hidden" value="PHAUK-Friends" /> <input name="SubmitAction" type="hidden" value="Subscribe" />
Subscribe to PHAUK-Friends
Enter your e-mail address:
<input name="emailaddr" size="21" type="text" value="your e-mail" /> <input alt="Click here to join PHAUK-Friends" type="submit" value="Subscribe" />
</form>
An easy way for patients with pulmonary hypertension and their carers to keep in touch.

Transplantation: Second Wind - Subscribe
Second Wind provides "support, love, advocacy, education, information and guidance" to lung transplant recipients, lung surgery candidates, people with related pulmonary concerns, and their families. If you are interested in joining their active e-mail list, send a e-mail to listserv@home.ease.lsoft.com with a one-line message body of: SUB SECONDWIND firstname surname (NOTE from Second Wind: DO NOT use your e-mail address!)

Scleroderma & Autoimmune Digest Email Support Group

<form action="http://groups.yahoo.com/subscribe/SDandAdigest" method="GET"> <input name="listname" type="hidden" value="sdandadigest" /> <input name="SubmitAction" type="hidden" value="Subscribe" />
Subscribe to SDandAdigest
Enter your e-mail address:
<input name="emailaddr" size="21" type="text" value="your e-mail" /> <input alt="Click here to join SDandAdigest" type="submit" value="Subscribe" />
</form>
The purpose of this list is for people with Scleroderma, Lupus, Fibromyalgia and associated disorders to feel safe among others who truly understand... to obtain information and support, as well as cope with emotions without fear of judgment.


Scleroderma World

<form action="http://groups.yahoo.com/subscribe/SDWorld" method="GET"> <input name="listname" type="hidden" value="SDWorld" /> <input name="SubmitAction" type="hidden" value="Subscribe" />
Subscribe to SDWorld
Enter your e-mail address:
<input name="emailaddr" size="21" type="text" value="your e-mail" /> <input alt="Click here to join SDWorld" type="submit" value="Subscribe" />
</form>
SD World is a list dedicated to providing a place where those who suffer from Scleroderma and other autoimmune problems may gather in a warm, friendly forum for an upbeat, open and free exchange of thoughts, ideas and information.


Lupus-Living

<form action="http://groups.yahoo.com/subscribe/lupus-living" method="GET"> <input name="listname" type="hidden" value="lupus-living" /> <input name="SubmitAction" type="hidden" value="Subscribe" />
Subscribe to Lupus-Living
Enter your e-mail address:
<input name="emailaddr" size="21" type="text" value="your e-mail" /> <input alt="Click here to join lupus-living" type="submit" value="Subscribe" />
</form>
Lupus-Living & Fibromyalgia Support Group for men and women with lupus and other chronic ailments such as Chronic Fatigue, (FM) Fibromyalgia, Sjogens, and Raynauds. Caretakers, friends, spouses, and relatives of the lupus patients are welcome to join. Discuss topics such as medications, symptoms, lab test results, being diagnosed, fatigue, chronic pain & pain control, daily living, altered life styles, lack of sex drive, working outside the home & home base, family relations, weight control, conserving energy, hair loss & appearance, hidden handicap re what the public sees, and more. Directed by a nurse (RN) who has Systemic Lupus and FM.

PHA News

<form action="http://groups.yahoo.com/subscribe/PHAnews" method="GET"> <input name="listname2" type="hidden" value="phanews" /> <input name="SubmitAction2" type="hidden" value="Subscribe" />
Subscribe to PHA news
Enter your e-mail address:
<input name="emailaddr2" size="21" type="text" value="your e-mail" /> <input alt="Click here to join phanews" name="submit" type="submit" value="Subscribe" />
</form>

PHA News is a regular subscription newsletter presenting items of interest to pulmonary hypertension patients, their families and medical professionals. This type of list is not a discussion group.