PHCentral WebBoard: Online
Support for Patients and Caregivers
The PHFriends email
list on webboard is exclusively for Pulmonary Arterial Hypertension
patients and
their families/friends.
Registrations are individually
screened.
WebBoard combines the features of a bulletin board,
an email list, and a chat room. Anyone
who registers with PHCentral WebBoard adds their name to hundreds
of other PH patients, families and friends. WebBoard members
wanting to communicate with the other members of WebBoard need
only to
send an email to that address. Everyone subscribed to the board
will get the message. PHCWebBoard allows people to read and
post messages to a bulletin board, but it also allows for the
convenience
of having messages from the bulletin board delivered to you
by email.
Click here to Register,
or click
here to log in if you are already registered for
WebBoard.
Webboard FAQ: Frequently
Asked Questions
for those who are already registered
and need help with Webbaord
You are encouraged to review the Netiquette
guidelines for using WebBoard.
Contact the webboard moderators by email
PHA-UK Friends
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An
easy way for patients with pulmonary hypertension and their
carers to keep in touch. |
Transplantation:
Second Wind - Subscribe
Second Wind provides "support, love, advocacy, education, information
and guidance" to lung transplant recipients, lung surgery candidates,
people with related pulmonary concerns, and their families. If
you are interested in joining their active e-mail list, send a
e-mail to listserv@home.ease.lsoft.com
with a one-line message body of: SUB SECONDWIND firstname surname
(NOTE from Second Wind: DO NOT use your e-mail address!)
Scleroderma & Autoimmune Digest Email Support Group
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The
purpose of this list is for people with Scleroderma, Lupus,
Fibromyalgia and associated disorders to feel safe among
others who truly understand... to obtain information and
support, as well as cope with emotions without fear of judgment.
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Scleroderma World
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SD
World is a list dedicated to providing a place where those
who suffer from Scleroderma and other autoimmune problems
may gather in a warm, friendly forum for an upbeat, open
and free exchange of thoughts, ideas and information. |
Lupus-Living
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Lupus-Living
& Fibromyalgia Support Group for men and women with lupus
and other chronic ailments such as Chronic Fatigue, (FM)
Fibromyalgia, Sjogens, and Raynauds. Caretakers, friends,
spouses, and relatives of the lupus patients are welcome
to join. Discuss topics such as medications, symptoms, lab
test results, being diagnosed, fatigue, chronic pain & pain
control, daily living, altered life styles, lack of sex
drive, working outside the home & home base, family relations,
weight control, conserving energy, hair loss & appearance,
hidden handicap re what the public sees, and more. Directed
by a nurse (RN) who has Systemic Lupus and FM. |
PHA News
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PHA
News is a regular subscription newsletter presenting
items of interest to pulmonary hypertension patients,
their families and medical professionals. This type
of list is not a discussion group.
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