2008

• What topics for a medical webcast would you be most interested in viewing?
• When you begin a new therapy, how do you monitor its effectiveness?
• As a PH patient, are you being treated for depression?

2007

• If you are a PH patient who has had a 6-minute walk test, what was your last test result?
• Do you feel that the hospital's Emergency Department (ER) in your area is equipped to treat a PAH patient?
• As a PAH patient, how many times have you been to a hospital's Emergency Department (ER) in the past 12 months, including for non-PAH issues?
• How did you learn about PHCentral?
• Would you characterize your relationship with your PAH doctor as:

2006

• Would you characterize your relationship with your PAH doctor as:
• Thyroid disease is sometimes associated with PAH. As a PAH patient, have you been tested for thyroid disease?
• Is your PAH the result of or associated with:
• Since diagnosis, have you been professionally treated for depression?
• For anyone who smoked, did you quit smoking when you were diagnosed with PH?

2004 - 2005

• Have you been told that your weight plays a part in your shortness of breath?
• In the course of a normal week, how much of the time on average would you say you feel well enough to follow through with your plans?
• As a PH Patient, how many hours of paid employment do you work per week?
• Do you have a "living will"?
• How many hours do you travel to see your PH specialist?
• Have You Received a Flu Shot?

2002 - 2003

• How Well Do You Sleep?
• Are you willing to participate in an advocacy campaign to politicians and the media by:
• What is your PRIMARY treatment for PH?
• Are you currently being treated with supplemental oxygen?
• Have you been FORMALLY placed on a lung transplant waiting list?
• Do you communicate with your PH clinician via email?
• Were you aware of Pulmonary Hypertension prior to diagnosis?
• Has your relationship status changed SINCE PH diagnosis?
• How much time passed between your first symptoms and diagnosis of PH?

2001

• What has your doctor said is the cause of your PH?
• What is your PRIMARY health insurance coverage?
• Who is your primary caregiver?
• Which activities do you regularly do to obtain info and support?
• Since diagnosis, have you been professionally treated for depression?
• What is your PRIMARY treatment for PH?
• Select ALL lifestyle changes you've made as a result of your PH diagnosis:

2000

• Are you being treated for thyroid problems?
• Which statement applies to you regarding social security disabilty?
• How would you describe the quality of the medical care you have received for PH after diagnosis?
• Are you being treated with oxygen, and if so, what delivery systems are you using?
• How many hours do you travel to see your PH specialist?
• As a PH patient, how many hours of paid employment do you work per week?
• Have you been formally placed on a lung transplant waiting list?
• Which of these doctors is the PRIMARY manager of your PH?
• What has your doctor said is the cause of your PH?
• How long since your diagnosis of PH by your doctor?
• Who helps you with the emotional side of PH?
• What is your primary treatment for PH?
  

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